Benefits Support.

Some people living with Duchenne may be entitled to financial support depending on their circumstances and how their condition affects daily life.

Common UK benefits may include.

• Personal Independence Payment (PIP).https://www.gov.uk/pip

• Universal Credit.

https://www.gov.uk/universal-credit

• New Style ESA.

• Disability Living Allowance (Some Existing   Claims). gov.uk/new-style-esa

Always check current eligibility rules and seek advice if unsure.

Wheelchairs & Mobility Equipment.

Support may be available through NHS Wheelchair Services following an assessment. Depending on need and local services, this can include manual or powered wheelchairs.

If standard provision does not meet your needs, some charities may help with grants or fundraising towards specialist equipment.

Home Adaptations & Equipment.

Equipment and home changes can improve safety, comfort, and independence. This may include.

• Ceiling track hoist.

• Mobile hoist.

• Slings.

• Shower chairs.

• Bath hoist or bath lifts.

• Ramps.

• Accessible bathroom changes.

An occupational therapy assessment through your local council or care team may help identify what is needed.

Disabled Facilities Grant (DFG)

If you need adaptations to your home, you may be able to apply for a Disabled Facilities Grant through your local council. This is means tested grant that can help fund changes such as ramps, wet rooms, stairlifts and widened doorways. An occupational therapist referral is usually required. More information is available at gov.uk/disabled-facilities-grants.

Grants & Charity Help.

Some charities may offer grants or support towards equipment, holidays, adaptations, or emergency needs. https://www.musculardystrophyuk.org

Useful organisation can include Muscular Dystrophy UK, local disability charities, and family support funds.

Helpful Tips.

• Keep copies of assessments and letters.

• Save evidence for benefit claims.

• Ask for reviews if needs change.

• Seek support early rather than waiting for crisis point.

Closing Message.

The right support and equipment can make a real difference to independence, comfort, and quality of life.