Community

A space to connect, share experiences, and ask questions, and support one another.

Welcome to the community.

Living with Duchenne can sometimes feel isolating, especially as you get older.

This community was created to bring people together - whether you're living with Duchenne, a family member, carer, partner, or simply someone who understands the journey.

No pressure, no judgement. Just real people supporting eachother.

Join our WhatsApp community.

Our WhatsApp community is a place for real conversations, advice, humour, and everyday life.  

Whether you want to ask a question, share your experience, or simply listen in, you're very welcome.

Community Guidelines.

• Treat everyone with respect.

• No bullying, discrimination, or harassment.

• Keep discussing supportive and helpful.

• Respect people's privacy and personal experiences.

• Medical advice shared in the group should never replace professional health care advice.

• We're all here for the same reason - support and understanding.