My story 

My Journey.

Hi I'm Kyle, I'm 39 and have Duchenne Muscular Dystrophy.

Life with Duchenne has thrown plenty at me over the years - hospital stays, dodgy equipment, and situation, so ridiculous you'd struggle to write them. But honestly I don't let them get to me. You deal with it, you see the funny side where you can, and you crack on.

I'm not one for doom and gloom. Never really have been. If something goes wrong, I'd rather have a laugh about it than dwell on it - and there's plenty to laugh about when you live with a condition like this, trust me.

Take restaurant, sometimes a waiter or waitress will walk up, completely blank me and ask whoever I'm with what I want to order. My wife, mates or whoever I'm with will just stare back at them. Awkward pause. Then I'll pipe up and order my food myself - because funnily enough, I do actually know what I want to eat. It doesn't happen all time, but when it does, it's hard to decide whether to be offended or entertained I actually go with entertained. Life's to short.

Why I started this website.

As you get older with Duchenne, it can start to feel like the world moves on without you a bit. Most of the support and information out there is aimed at kids and families - which makes sense - but adults are still here getting on with life too. Health stuff, equipment, money, independence, the future. It doesn't stop just because you've grown up.

I wanted to build something I'd actually find useful. Straitforward and honest. Something that treats people like adults who can handle real information without it being wrapped in cotton wool.

What this site is for.

DMD Connect is for real stories, practical information, and connecting with people who actually get it. No pity, no waffle, no talking down to people.

It it helps someone, great. If it gives someone a laugh on a bad day, even better.